Inclusion Body Myopathy 2 - 14 Studies Found Enrolling by invitation : Study to Evaluate the Safety and Efficacy of Ace-ER Tablets in Patients With GNE Myopathy or Hereditary Inclusion Body Myopathy : Hereditary Inclusion Body Myopathy Distal : 2016-04-04 : Drug: Aceneuramic Acid Extended-Release Tablets Other Names: UX001 Recruiting : A Study to Evaluate the Safety of Aceneuramic Acid Extended Release (Ace-ER) Tablets in GNE Myopathy (GNEM) (Also Known as Hereditary Inclusion Body Myopathy (HIBM)) Patients With Severe Ambulatory Impairment : Hereditary Inclusion Body Myopathy Distal : 2016-03-24 : Drug: Aceneuramic Acid Extended-Release Tablets Other Names: Ace-ER Completed : Natural History in CCFDN and IBM Syndromes : Inclusion Body Myositis, Sporadic Inclusion Body Myopathy, Autosomal-r : 2013-07-03 : Other: Natural History Assessment of natural history in IBM and CCFDN Active, not recruiting : Clinical, Biological and NMR Outcome Measures Study for Hereditary Inclusion Body Myopathy Due to Mutation of UDP-N-acetylglucosamine 2-epimerase/N-acetylmannosamine Kinase Gene (GNE) : HIBM : 2014-04-08 : Other: motor function and strength assessment <<< Previous